SOUTH YARMOUTH, MA, — Progressive, Boston-based non-profit, Cure Rare Disease (CRD) will host its annual “Ride to Cure Rare Disease” event on Saturday, September 21,, 2019 in South Yarmouth from 9:00 AM - 1:00 PM with a reception to follow at the Sea Dog Brew Pub.
Ride to Cure Rare Disease is the signature charity bike ride for CRD. Riders will have an option to choose between the 25-mile route from the new head of the beautiful Cape Cod Rail Trail through the scenic Nickerson State Park, or the 50-mile route which continues onward to Wellfleet and back to South Yarmouth.
There are over 7,000 rare diseases impacting 300M+ people worldwide, and time is of the essence. Until very recently, patients with life-threatening diseases have had to rely on the longstanding practice of developing “one size fits all” treatments through clinical trials, a process that can take 12-15 years. With less than 10% of the drugs tested approved by the FDA, this process has been and continues to be slow and unsuccessful for those who are suffering.
CRD has aggregated leading researchers and clinicians nationwide to develop customized therapeutics for rare, genetic, fatal diseases like Duchenne Muscular Dystrophy (DMD), one of 8 designated rare diseases that CRD is dedicating resources to address.
The organization and its multidisciplinary approach to developing treatments has been inspired by the experience of its Founder & President, Rich Horgan. Horgan is a 27-year old Cornell and Harvard graduate—an emerging entrepreneur with a passion to drive tangible transformation in the healthcare space. His family, including his brother Terry, has been touched by Duchenne Muscular Dystrophy for three generations.
“I founded CRD in reaction to the disappointing lack of therapies and feasible developing treatments for my brother Terry, and millions of others who suffer from the wide variance of genetic diseases like Duchenne,” stated Rich Horgan, Founder & President of CRD. “Our mission is to pioneer customized therapeutic developments in record time, thanks to our stellar team of researchers, partners, and our donors. Every single dollar counts, and propels us closer to a cure.”
To support the Ride to Cure Rare Disease and inspire hope for children and their families in need, register today as a participant, join an existing team, or donate. All fundraising proceeds will contribute to the development of patient cell lines that enable CRD’s team of researchers to develop customized treatments for those who have faced repeatedly failed attempts via the existing market approach.
To learn more or get involved, visit http://ride.cureraredisease.org.
The purpose of Cure Rare Disease is to end rare disease. There are over 7,000 different rare diseases impacting over 300 million people worldwide. As anyone who is touched by rare disease knows, time is of the essence. Cure Rare Disease has formed an unprecedented collaboration with leading researchers to develop a customized therapeutics, in time to save our loved ones. The approach that Cure Rare Disease is pursuing is unprecedented. By aligning researchers around a clear goal with foundation support and oversight promotes accountability, takes advantage of group wisdom to enable rapid development without traditional drawbacks. Through this effort, we aim to rapidly develop customized therapies for rare, genetic diseases in record time.